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zaterdag 11 november 2017

Phyllodes tumor Borderline


The technicians, being unusually less chatty than my first visit, went through the motions. I assumed it was because I wasn't a 'first-timer' anymore, so this must be more routine behavior. I mean, hell, my biopsy already came back as benign!

I debated sharing my experience, as it was not a traditional breast cancer story, but hoped that one of you out there that is past-due on a mammogram will get it done this month. If you are over 35 a mammogram is likely "routine healthcare" and is covered at zero cost to you. No excuses. Call your insurance company.

In the spring of 2016, I found a lump in my breast, and after a few routine diagnostic tests and a core needle biopsy I was cleared to go on with life since all tests came back fine. Seven months later (I was a month behind on my follow-up) I returned to the breast center for another mammogram and ultrasound-
totally chill .
The ultrasound technician retrieved the doctor who asked me if I was aware my tumor had doubled in size over the last few months. I said 'no', but because my core needle test came back benign there was 'no issue right'? She explained that there was a very slim chance I could have a rare #phyllodes phyllodes tumor and it needed to be surgically removed for testing, and that she was no longer confident in my original diagnosis or benign diagnosis. She explained that a needle biopsy doesn't work on phyllodes tumors. So she referred me to a surgical oncologist.
The surgical oncologist assured me it was a very slim chance it was a phyllodes tumor, and an even slimmer chance that it would be anything but benign, but we should just rule it out. 
Surgery one (breast conserving) was complete, no word from the surgeon. A week later I met my surgical oncologist for results and surgical follow-up. Everything went sideways, it was a #phyllodestumorphyllodestumor, and it was not benign- it was called 'borderline'. My doctor was so shocked at such a #rare diagnosis she asked for a second pathologist to review and they confirmed the same diagnosis.

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